Wednesday, July 13, 2011
Osteogenesisimperfecta VS. Osteochrondrodysplasia
These two very long words are what is holding up our chance to adopt our little guy. I look it up. Google it. Study it. Call bone doctors. Yet nothing brings the two together in a way that we can adopt him at this point. It is so amazingly frustrating. If when he was diagnosed early on with a broader diagnosis his condition could fall under Osteochrondrodysplasia. It is in fact the less precise diagnosis of bone disease and OI falls somewhat underneath it as a sub class disease. It is hard to believe this could be the difference in him getting to be adopted or left to be institutionalized. I believe they are working on his classification. I believe that one day soon I will get information that will make all this right. Still the waiting is hard. Thank you for your prayers as we wait expectantly on that next miracle.
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1 comment:
Lisa, I am praying that you will hear something soon.
Anna
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