Wednesday, July 13, 2011

Osteogenesisimperfecta VS. Osteochrondrodysplasia

These two very long words are what is holding up our chance to adopt our little guy.  I look it up. Google it. Study it. Call bone doctors.  Yet nothing brings the two together in a way that we can adopt him at this point.  It is so amazingly frustrating.  If when he was diagnosed early on with a broader diagnosis his condition could fall under Osteochrondrodysplasia.  It is in fact the less precise diagnosis of bone disease and OI falls somewhat underneath it as a sub class disease.  It is hard to believe this could be the difference in him getting to be adopted or left to be institutionalized.  I believe they are working on his classification.  I believe that one day soon I will get information that will make all this right.  Still the waiting is hard. Thank you for your prayers as we wait expectantly on that next miracle.

1 comment:

The Weinantz Family said...

Lisa, I am praying that you will hear something soon.

Anna